BEGIN:VCALENDAR VERSION:2.0 PRODID:-//pretalx//conferences.acspri.org.au//2024//speaker//RPM3C7 BEGIN:VTIMEZONE TZID:AEST BEGIN:STANDARD DTSTART:20000326T040000 RRULE:FREQ=YEARLY;BYDAY=-1SU;BYMONTH=3;UNTIL=20050326T170000Z TZNAME:AEST TZOFFSETFROM:+1100 TZOFFSETTO:+1000 END:STANDARD BEGIN:STANDARD DTSTART:20060402T040000 RRULE:FREQ=YEARLY;BYDAY=1SU;BYMONTH=4;UNTIL=20060401T170000Z TZNAME:AEST TZOFFSETFROM:+1100 TZOFFSETTO:+1000 END:STANDARD BEGIN:STANDARD DTSTART:20070325T040000 RRULE:FREQ=YEARLY;BYDAY=4SU;BYMONTH=3;UNTIL=20070324T170000Z TZNAME:AEST TZOFFSETFROM:+1100 TZOFFSETTO:+1000 END:STANDARD BEGIN:STANDARD DTSTART:20080406T040000 RRULE:FREQ=YEARLY;BYDAY=1SU;BYMONTH=4 TZNAME:AEST TZOFFSETFROM:+1100 TZOFFSETTO:+1000 END:STANDARD BEGIN:DAYLIGHT DTSTART:20000827T030000 RRULE:FREQ=YEARLY;BYDAY=4SU;BYMONTH=8;UNTIL=20000826T170000Z TZNAME:AEDT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 END:DAYLIGHT BEGIN:DAYLIGHT DTSTART:20011028T030000 RRULE:FREQ=YEARLY;BYDAY=-1SU;BYMONTH=10;UNTIL=20071027T170000Z TZNAME:AEDT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 END:DAYLIGHT BEGIN:DAYLIGHT DTSTART:20081005T030000 RRULE:FREQ=YEARLY;BYDAY=1SU;BYMONTH=10 TZNAME:AEDT TZOFFSETFROM:+1000 TZOFFSETTO:+1100 END:DAYLIGHT END:VTIMEZONE BEGIN:VEVENT UID:pretalx-2024-9SZ8LJ@conferences.acspri.org.au DTSTART;TZID=AEST:20241128T110000 DTEND;TZID=AEST:20241128T112000 DESCRIPTION:Background\nChanges in migration patterns to Australia have res ulted in significant changes to the range of ethnicities in the population . This is important because the prevalence of blood types differs between people with different ethnic ancestries which can lead to difficulty in me eting the needs of patients who require repeat transfusions. Filipino peop le have a relatively higher frequency of a rare blood type known as Jknull (Jk(a–b–))\, although it is still only present in ~1.4% of that populat ion. Demand for Jknull blood in Australia is increasing\, but only 13 curr ent donors in Australia are known to have this blood type. Our aim was to explore the perspectives of donors with Filipino ethnic ancestry on donati ng blood\, and participating in research.\nMethod\nA qualitative approach was used to identify intersubjective meanings and generate explanatory con cepts to answer the research questions and inform future work on this topi c. \nWe conducted three focus groups and four interviews with 17 participa nts online via Microsoft teams. All participants were of Filipino ethnic a ncestry. Most participants were from NSW or QLD and the mean age of partic ipants was 42 years. Focus groups were conducted to obtain insights genera ted through group discussion and interaction on the topics of interest. In terviews were conducted with donors who were not able to participate in th e focus groups.\nResults\nBeing part of the Filipino community in Australi a was salient for participants and their family and friends. Participants thought community views on blood donation in Australia were informed by sy stems in the Philippines where donating is seen as a one-off request if th ere is a need within the family or friends or was seen as a paid activity. \nParticipants reported feeling as though they were doing something good through blood donation\, which was reinforced by the knowledge of who thei r donations were helping. Participants mentioned obtaining this informatio n through the text messages received after donation\, through information received in centre and through knowing blood product recipients. However\, lack of education and awareness about the blood donation process\, concer ns about safety such as the perception that needles were re-used\, being w orried of needle insertion or weighing less than 50 kilos were seen as bar riers towards blood donation. \nParticipants were positive about participa ting in research especially if it benefited their community. However\, the y expressed caution about the privacy and confidentiality of research data \, particularly linkage of their research and donation data with external health records and preferred to provide consent for a specific use of thei r data or samples than to provide broad consent. Participants also voiced their concerns about participating in research run by an organisation othe r than Lifeblood\, particularly research involving the use of genomic data . They thought that understanding how the research would lead to better he alth outcomes for Filipinos would increase participation. Participants wan ted to know how any genomic results collected and returned would be kept c onfidential\, how this information is de-identified and how they would be informed about any incidental findings identified.\nConclusion\nOverall\, Filipino Australians are open to donating as the idea of helping loved one s and feeling good about doing something helpful was highly appealing. How ever\, participants thought that some individuals would be hesitant to don ate blood because they do not know much about the process\, have concerns about re-used needles\, are afraid of needle insertion\, think they might not be eligible\, or their blood is not good enough. Participants also dis cussed that Filipino Australians would be interested in participating in r esearch if they have clear\, trustworthy information and feel confident ab out privacy and the positive impact of their contribution. DTSTAMP:20260308T075028Z LOCATION:Cullen Room SUMMARY:Unlocking the potential of Filipino blood donors: a giving and enga ging community - Carol Jos URL:https://conferences.acspri.org.au/2024/talk/9SZ8LJ/ END:VEVENT END:VCALENDAR