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UID:pretalx-2022-YKJJVK@conferences.acspri.org.au
DTSTART;TZID=AEST:20221123T132000
DTEND;TZID=AEST:20221123T133500
DESCRIPTION:The experience of living with chronic kidney disease (CKD) can 
 be confronting\, challenging and complex. Undergoing centred-based haemodi
 alysis for 4 to 5 hours\, 3 times a week has a significant impact on peopl
 e’s lives.   This presentation reports on an arts and health research pro
 cess that sought to understand this experience through the participant’s 
 personal stories. \n\nThe research collected stories from 14 people with C
 KD\, in a longitudinal qualitative study that used narrative\, ethnodrama 
 and arts-based research methods.  Data was collected through observations\
 , 47 interviews and / or creative activities\, initially face-to-face and 
 later by telephone due to COVID19 restrictions.  The stories were analysed
  using a narrative analysis and an ethnodramatic process of creating a per
 formance.  This disseminated the findings and was also condensed into an 8
  minute film. \n\nThe performed work\, stILL-Life\, involved readings by a
 ctors\, as well as music\, film and imagery that responded to the collecti
 ve narrative of the participants.  Sharing stories in this way\, deepened 
 understandings of the lived experience\, and amplified the familiar univer
 sal stories as well as those specific to the dialysis experience. Storytel
 ling can help us make sense of our experiences\, particularly when signifi
 cant change and loss disrupts our life path.  \n\nThis research recognises
  the person with CKD as the driver of their unique journey.   It demonstra
 ted the valuable role that the arts can play in understanding the lived ex
 perience\, and highlights how the arts can enrich and deepen research prac
 tice.\n\nRecording link: https://acspri-org-au.zoom.us/rec/share/hkc5yM1BI
 R2y-mm1UPVeeHVyAlDgr-uJebIZ_CUn6oTidH3tS2Kkl0RwzrX4dQmv.jKTgQbhWB-n9tpLD?s
 tartTime=1669170103000
DTSTAMP:20260912T201745Z
LOCATION:Zoom Breakout Room 1
SUMMARY:stILL-Life: a research process using story and performance to inves
 tigate living with kidney disease and receiving haemodialysis. - Leigh Tes
 ch
URL:https://conferences.acspri.org.au/2022/talk/YKJJVK/
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